Governing Participatory Health Data in Public Digital Infrastructure: Lessons from the Basque Country

This article examines how participatory self-reporting changes when embedded in public digital health infrastructure, using the Basque Country’s Mi Diario as a case. It identifies tensions around responsibility, benefit distribution, and equitable participation, arguing that legitimate governance requires transparent data use, accountable benefit-sharing, inclusive participation pathways, and locally grounded evaluation of patients’ experiences and institutional effects within public healthcare systems.